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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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I have found it very hard to post this but Richard has encouraged me to post .
awfully depressing time with physio today.
felt so positive that she would help me but she cant. basically I'm totally unstable! she had a good look at the joints and the prbs with the back.
the muscles just dont hold properly. all the supporting joints are unstable and really it is dangerous for me to stand/ walk. She got me to stand and she has never seen anyone quite as bad at this age and she gasped when I struggled to remain standing without support and wobbled like a weeble.
I then leaked some tears. She proceeded to tell me to try counselling and accept the wheelchair.
she is sending me to hydro but I dont see the point frankly.
I feel so miserable tonight. I want to lock myself away.
No one need respond. Sometimes there are no words.
Jenni x how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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 Much love, dearest Jenni.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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You are right Jenni - sometimes there are no words. I could leak a few tears for you. Thinking of you as always.
Julie xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Lots of love and hugs Jenni,
Doreen xxxx
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 64
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Dear Jennie
I am thinking about you and I will say a prayer that this phase will soon pass.
Please take care
Love Val
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Dear Jenni
You have been very much in my thoughts in recent days, sending you all my love.
Julia xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Jenni, there are no words.........  BARBARA
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Oh Jenni ... I have just emailed you (not that it will make one iota of difference to this news!) Sorry to hear about today's issues, your good news must be just around the corner, surely. My initial thoughts are 1) no-one is a hopeless case (as she suggests, wheelchair indeed) 2) try a different physio. I wouldn't accept that outcome Jenni especially as you felt so positive. Please don't give up. Was it an NHS appointment? Hydro may be useful as a starting point as it will allow relative ease of movement and encourage supported muscle usage. Worth a try at least. Thinking of you and sending a hug your way, Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 157 Location: TYNE AND WEAR
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Lots of love and hugs to you Jenni, So sorry, Much love Alison xxx
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Dear Jenni,
So sorry to hear your devastating news, where one door closes another opens, like we all say get another opinion there is always HOPE never forget this. Sending you my love and hugs, please don't give up keep strong we are all with you. Love Lorna xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Dear Jenni, I'm thinking of you with love. x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Oh Jenni, there are no words but you always have our prayers in abundance,
God Bless,
Amanda
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Rank: Advanced Member
Groups: Registered
Joined: 2/26/2010
Posts: 271
Location: hampshire
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sending you lots of love and hugs Jenni, keep your pecker up love!
Heather xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
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Jenni I leak all the time... I agree with lynn - 2nd opinion different OT someone supportive to help you not write you off with an "easy solution". You have been through a lot so perhaps havent been using those muscles much. Sending you lots of hugs
Mari xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/8/2009 Posts: 230 Location: Leicester
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Sending you huge 
That must have been so hard to hear, especially from someone such as a physio but I do think she was naughty for telling you to get some counselling and embrace the wheelchair
I agree with others in that I think you should get a 2nd opinion. The fact that you stood up was a start, ok so you struggled but you have been so unwell lately and not been able to do much thats its no surprise that you found it hard.
Like with anything, its going to take time and small steps but I think where theres a will, there's a way and you certainly have a lot of will!
Hydro would definitely be a good starting point, along with non-weight bearing exercises. The muscles need to be coaxed back into action and strengthened. This is going to take time and for that you need a patient, supportive physio.. The one you saw certainly doesn't seem patient.
Thinking of youHelly x Celebrating 10yrs of National Rheumatoid Arthritis Society Doing a Tandem Skydive - May 2011 - All Sponsorship Welcome - www.justgiving.com/helencopeland Read my blog - Helly Copeland
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Hi Jenni, so sorry to hear this news , but i agree with Helly and all the others you must get a second opinion ,
Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 1/5/2010 Posts: 89 Location: Mereworth, Kent
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no words ..... just love for a special lady xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hello Jenni im came on specifically to see how you are always post we here hugs of support,prayers you have been so poorly its not easy to move after all that,id try the hydro and see how you go with that. such a harsh thing say to you naughty phsyio. much lv melly  cuddly cats make my world seem so much more fun
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Rank: Member
Groups: Registered
Joined: 4/24/2010
Posts: 12
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DEAR JENNI ...I WAS VERY DOWN WHEN MY PHSIO SPOKE TO ME HARSHLY.........I WAS BROKEN ..IT WAS VERY UNPROFESSIONAL OF HER TO BE SO BLUNT.......IT TOOK ME 2 DAYS TO GET OVER HER WORDS, SO NOW I HAVE MADE AN APPOINTMENT TO BE REFERRED TO ANOTHER PHSIO IN ANOTHER HOSPITAL.I AM NOT GOING TO GIVE UP AND NEITHER SHOULD YOU...WITH ALL MY LUV..SHEENA
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Rank: Advanced Member  Groups: Registered
Joined: 12/7/2009 Posts: 96 Location: Buckinghamshire
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Poor you Jenni, I'm sorry to hear you've had such devastating news. Thinking of you.
Take care. xx
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